ok... zaavan has been on the ketogenic diet for exactly a month now and so far so good! we have had to completely rearrange our schedule, his feedings have become a science experiment, hell, our lives have become one big science experiment. after one month, he has had 7 days seizure free which is a lifelong record for him! it might not sound like that big of a deal, but if you consider that zaavan has been having seizures since approx. 12 hrs. after birth and multiple episodes per minute since then at the worst, then those words ring music to your ears. even on 4 anti-convulsants he was only having partial seizure coverage. on his best day we would observe 4-5 seizures. going 7 days without his typical episodes has been an answer to prayer. but not only that, it has been a complete surprise.sometimes we don't ask the lord for what we really want because we don't think we'll ever see eye to eye, at least when i pray, i take it as sacred time of communication with the lord, that awakens me from the normal push and pull of day to day existence, and somehow that enables me to step outside myself and appreciate what is going on around me and in me and everywhere. but when i praise the lord and am reminded of all the prayers that are sent up for zaavan, it breaks my heart. not in that bad, unrequited way, but the way that humbles and opens eyes and hearts and is completely fulfilling like the holy spirit is. i can't really explain it better than that. sorry. i am jumping out of my skin because god is good! can you even understand? i love my son. i love that he isn't having seizures right now, and i love our god no matter what happens....stay tuned.
1 Comments:
At 9:46 AM, Anonymous said…
how was physical therapy yetserday?
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